Classical EDS

There are many types of EDS. I was diagnosed with Classical EDS. Classical EDS is characterized by highly elastic, soft, and doughy skin; unusual scarring; and loose joints. People who have Classical EDS have smooth, stretchy and fragile skin. They are easily bruised and their wounds often split open and heal slowly. We have abnormal range of motion and are more likely to sublux, dislocate and sprain. It can also cause cardiovascular and neurological issues. Problems also caused by EDS include; bleeding, double jointed, heart murmurs, muscle weakness, muscle pain and physical deformity. I am in the process of being diagnosed with Postural orthostatic tachycardia syndrome (POTS). It is a form a dysautonomia. This causes an irregular heart rate, fatigue, dizziness, headaches, heart palpitations, nausea, exercise intolerance, diminished concentration, shaking, fainting, coldness and pain in the extremities, chest pain and shortness of breath. POTS is definitely not uncommon in EDS patients. The shortness of breath, neurological symptoms, chest pain, fainting and heart palpitations have caused me many visits to the ER in the past year. Living with EDS and the pain and complications that come with it will be my biggest obstacle in life. I have to find a way to fight through the pain, deformities and depression. I wont let EDS win.